Thursday, February 17, 2011

Packing Envy !!

This week has been a hectic week already for me as I am preparing for an 8 day Southern Caribbean Cruise !!  Yes...8 days of Sun, Sand, and TONS of food !!  Woo-Hoo ... or as I call it ... Diabetic Heaven!  LOL !! 
The hecticness comes from the fact that I can not just pack and go - Oh no, not us JD'ers ... we have to think about getting doctors notes from our doctors for the medications, the insulin delivery systems (syringes, pumps, etc.), and even the snacks and juice we need to pack along with the shorts, swimsuits, and the many toiletries I can not live without - like room deodorizer and a glade plug in to make my cabin nice and fresh smelling !!
And, it's not just one doctors note that I needed to get ... I had to get a note from my Endocrinologist for the Insulin, the Insulin Pump supplies, the blood glucose meter, etc.. Then there is the Opthamologist...I needed to get a note explaining that the bottles of liquid are for the glaucoma in my left eye and not some 'mystery' liquid that the TSA would stop and make me throw out.  Then there is the note from the foot and ankle specialist for the CROW boot that I need to wear because of the Charcot disease that has set in on my right foot ... (that will be a topic for another blog) - Phhheewwwww... after all these notes and supplies I now need another suitcase, but who wants to pay $75.00 for an additional bag at the airport ... so it's either supplies for 10 days + or it's less clothes and shoes to pack; Looks like I'll be recycling outfits !!  LOL!!
I sure hope the TSA is ready for me ... or better yet...I hope they pat me down and run me thru the scanner (hey, it might be fun !!!)
So the packing began ... love the zip lock baggies for the little items ... syringes, check.  Lancets for checking my blood glucose, check.  Blood glucose monitor, test strips, alcohol preps, check!  Then it's off to the next ziplock baggie... antibiotic ointment in case of infection or cut on body, check.  Bandaids, check.  Antibiotics in case, check. And the list only gets longer from there ... the largest ziplock bag (almost 1.5 gallon size) holds 10-15 days worth of insulin pump resevoirs, tubing, extra bottles of insulin, etc...Because you never know if your going to need extras & I don't want to know what it's like to be 'stranded' without some of the supplies!
I wonder if I could get away with carrying a carryon bag and an additional large bag and disguise it as a uber large 'trendy' bag !!  You know - the type the celebrities all use that look as if it is larg enough to house a homeless person !!
OH YEAH --  I almost forgot ... Where am I going to put the C.R.O.W. boot ??  Now - for those of you that are not familiar with a CROW boot ... it is a very large, bulky, black, herman munster looking boot - or think very chunky moon boot that is hard hard plastic and has big velcro straps to stay on your foot & takes up a mid-sized duffle bag on its own.   :(  Uuggghhhh!
Wow... Airtran is going to love me and all my 'supplies' !  It might be easier to just ship everything overnight by FedEx to San Juan !!  LOL !!

I am envious of all you 'Normal' people and even Type 2 Adult onset diabetics ... I want to pack minimally ... or at the very least just pack a blood glucose meter, test strips, and a bottle or two of pills  -  Yeah, I have Packing Envy !!  There... I said it !!

Once the hecticness has cleared and my packing is finished ...with my bag is weighing in at 49.99#'s (at the least)...I will then forget for a moment that I have JD and will concentrate on the beauty that I will be surrounded with on the Caribbean Sea and the Islands!!  Sugar-Free Margherita, anyone ??!!

Till next time!

Wednesday, February 16, 2011

What's in a 'name' ...

Juvenile Diabetic.  I guess in essence that is part of what and who I am.  However, I am going to be 39 on next does that still qualify me as a 'Juvenile' ??  LOL.  I would have thought that with all the technology and modern advances in medicine they could atleast come up with a name for us 'Inbetweeners' (you know, inbetween being a juvenile and a geriatric) .
I realize and can appreciate that they now call us Type 1 Diabetics - but really?  All that really means to me is someone on insulin - which means if my 90 year old neighbor needs to be put on insulin than they are Type 1 - but I am trying to dig into something much deeper here ... Bear with me ... I mean, as a juvenile diabetic, most of us have had it from birth - teens, we have endured endless shots (thousands in some cases),  millions of finger pokes, handfuls of high and low glucose numbers, countless trips to the endocrinologists, and even mild to sever complications that come along with being US.  We've experienced the most because we've had it the longest ... Shouldn't we be able to get a new name like... oh, I'm thinking ...  "Graduated Juvenile Diabetics" ... We have 'graduated'to the next stage ... or how about 'Mature Juveniles' ... hmmm... okay maybe that doesn't apply to me at all times (hahaha), expecially when it comes to my love of Disney!!
I try to stay informed with what's going on in the diabetes world, and I am involved with local events for the Juvenile Diabetes Association, but I always find it funny that when we go to these events it is mostly geared toward the 'youngens' !  I feel as if I kind of blend into the background because I am not young enough (usually under 18) to be considered juvenile, but I do not fit under the category of Type 2 ... I just feel as if we 'inbetweeners' need to find a 'spot' where we can fit in !!
Does anyone else ever feel this way ??
I guess what spurred this whole thought for me was the fact that most people are not educated on what the two types of Diabetes are, and they assume when I tell them that I am a diabetic that I have gotten it as an adult and it was the result of eating too much sugar (I am still in amazement that people still think that way).  Now if I tell someone that I am a Juvenile Diabetic - they look at me as if they are not sure what that means, and one person even asked me if I were teasing because I am too old to be a juvenile!  Ha!   I'm stuck in limbo - an absolute purgatory of diabetes ...
Well, I guess until I can come up with a name that fits the category that I am in (39 yrs old with Diabetes for 26 yrs - yes, got it when I was 13) I will just sit tight, laugh at those that don't 'get it', and enjoy that into my mid-life there is still a part of me that will always be 'JUVENILE' !!!

Hope you all have a blessed day !!!