Tuesday, January 22, 2013

Sadly enough - Some will NEVER 'get it' !

Life is good most days and some days it's amazing to be me, to be alive, and there are even days when it's okay to be a juvenile (type 1) diabetic.  I think about the diabetes daily ...I have too... there isn't any day that I can just sit back and say 'today is the day that I will NOT have diabetes, and I'll just pick up tomorrow where I left off today'.  Ha! I would love to do that for hours/days at a time - ahhhh, but alas, my body plays really mean tricks on me and the moment I would decide to do that - my near normal sugar reading would sky-rocket to the 400 or 500's and in somecases I find a 550 (or higher ...yikes!).

Some will 'Never Get It' .  What I mean by this is just that .. "Some will never get it".   Some will never 'get' what we as JD's go thru, and a larger number of people will never 'get' what it's like to have a condition called 'CHARCOT FOOT'.  I was diagnosed with Charcot foot in 2009/2010 - and it's caused from neuropathy of the feet, where the bones begin to soften and fracture, and then the bones fall, arches fall, and the feet become deformed.  I live with this on a daily basis.  Not being able to walk disntances longer that 100 meters at a time, not being able to ride a bike, jog, run, etc...
here is a quick synopsis I found in a Yahoo! document that might give you, the reader, a better understanding of what this is: http://voices.yahoo.com/all-diabetics-know-symptoms-charcot-626762.html

I work in corporate america ..you know the place where all the men and women wear suits, skirts, heels higher than my ruler and pointier than a sharpened pencil, and where the dress code needs to be 'dressy' so that the clients think we have it all together !  Well, I haven't been able to wear anything other than New Balance Tennis shoes and C.R.O.W. Boots for almost 4 years now - and amidst the stares and looks that I get, I do have some ask questions like 'when are you going to be out of that boot?' ... well, it's so mundane always having to tell the same stories ... I have Charcot foot, the bones are breaking and falling, my feet are becomming deformed, yada-yada-yada.  I do get the 'awwwww' moment, but then five minutes later these are the same people asking me to run up and down for them the entire day.  I guess they don't see that I'm in extreme pain most times and that I now walk with a cane.  I guess they missed the line on the doctors note that says I must not do anything that requires lifting, walking, and must stay in a seated position.  These are the one that 'will never get it' .

The last month or two I've now had to walk with a cane - the feet are just too sore to stand on and walk on.  I limit the amount of activity that I do..and I dread this most of all, because I don't want to gain any more weight.  Walking with a cane isn't any fun - I just wish some people would 'get it' !